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DMD Heart Awareness

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Duchenne Muscular Dystrophy
BE  PROACTIVE  ABOUT
Your aim is to preserve a good heart before symptoms are observable.   After childhood, the aim is to potentially improve a not-so-good heart.
LOOKING AFTER YOUR HEART
"DMD Be proactive about looking after your heart" by Deborah Robins is licensed under Creative Commons Attribution-NonCommercial.  4.0 International License.  2015. NB Not to be construed as medical advice.
 90% exhibit heart dysfunction by 18 yrs
10
9
IN
Cardiomyopathy is not just a risk factor
Bourke, J.  CARE-NMD, Budapest. April 2013
Facts and Tips
Echocardiogram (echo), electrocardiogram (ECG) and blood pressure track changes from year to year.
   Watch PPMD webinars to gain a general understanding of how interventions may benefit your heart.
A combination of ACE inhibitors and beta blockers offers the best preventative result.
REMEMBER!
it's your responsibility
Visit your cardiologist every year Re-schedule a missed check-up
Don't avoid finding out if your heart is worse BE AWARE OF YOUR...
Aim to preserve a Good Heart
You are not a doctor but you are your best advocate ASK for a new drug or intervention to treat any decline in heart function
Never rely on vague reassurances from a specialist outside of a DMD clinic setting. Your heart may not be "fine".
LV Ejection Fraction % Fractional Shortening % ECG Blood pressure
Resources: http://tinyurl.com/cardiacmanagement http://tinyurl.com/cardiacwebinars http://tinyurl.com/cardiacinvolvement