DMD Heart Awareness

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DMD Heart Awareness

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Duchenne Muscular Dystrophy

BE PROACTIVE ABOUT

Your aim is to preserve a good heart before symptoms are observable. After childhood, the aim is to potentially improve a not-so-good heart.

LOOKING AFTER YOUR HEART

"DMD Be proactive about looking after your heart" by Deborah Robins is licensed under Creative Commons Attribution-NonCommercial. 4.0 International License. 2015. NB Not to be construed as medical advice.

90% exhibit heart dysfunction by 18 yrs

Cardiomyopathy is not just a risk factor

Bourke, J. CARE-NMD, Budapest. April 2013

Facts and Tips

Echocardiogram (Echo), electrocardiogram (ECG), Cardiovascular MRI (CMRI) and blood pressure, track changes from year to year.

Watch PPMD webinars to gain a general understanding of how interventions may benefit your heart.

A combination of drugs may include: ACE inhibitor, beta blocker or antifibrotic for a preventative result.

REMEMBER!

it's your responsibility

Visit your cardiologist every year Re-schedule a missed check-up

Don't avoid finding out if your heart is worse BE AWARE OF YOUR...

Aim to preserve a Good Heart

You are not a doctor but you are your best advocate ASK for a new drug or intervention to treat any decline in heart function

Never rely on vague reassurances from a specialist outside of a DMD clinic setting. Your heart may not be "fine".

LV Ejection Fraction % Fractional Shortening % ECG Blood pressure

Resources: http://tinyurl.com/cardiacmanagement

http://tinyurl.com/PPMDcardiacwebinars

http://tinyurl.com/cardiacinvolvement

http://www.parentprojectmd.org/care/care-guidelines